Useful Links

On this page we have compiled a list of Web sites that we feel will benefit you, as they provide either more specialised information or we have found them useful and to be good sources of information.

The Leeds Children and Families Resource Directory

www.leedschildren.info
This site provides local information regarding services for children within the city of Leeds

Early Support Programme

www.earlysupport.org.uk/

Best Evidence and Treatments

www.clinicalevidence.com/ceweb/conditions/chd/chd.jsp

This website provides information regarding the best evidence available for treating various conditions. It only provides evidence if it is available. There may be many conditions particularly in child developmental disorders where evidence is lacking.

ADD/ADHD

www.addcontact.org.uk
Site providing a look into ADD/ADHD from a personal view as well as providing information, links and more on ADD and related disorders

Autism/Aspergers Syndrome

www.nas.org.uk
Website for information about autism and Asperger syndrome, and about the support and services available in the UK for people with an autistic spectrum disorder (autism or Asperger syndrome) and their family

Children First For Health

www.childrenfirst.nhs.uk
This site is an excellent source of information regarding your child's health. It appears on every page in our site. It is an interactive guide to your child's heallth.

Children with Disabilities

www.cafamily.org.uk/
Main source of information about rare disorders and are able to assist affected adults as well as children. Contact a Family is a UK charity which helps families who care for children with any disability or special need.

Communication Matters

www.communicationmatters.org.uk

Communication Matters is a UK national charitable organisation of members concerned with the augmentative and alternative communication (AAC) needs of people with complex communication needs.

Deafness / Hearing Difficulties

www.ndcs.org.uk
National Deaf Children’s Society is a UK charity exclusively dedicated to supporting all deaf children, young deaf people and their families in overcoming the challenges of childhood

deafness.

www.rnid.org.uk
RNID is the largest charity representing the 9 million deaf and hard of hearing people in the UK

Disability Living Allowance

www.diredt.gov.uk/disabledpeople/financialsupport/financialsupportarticles/fs/en?content_id=10011731chk=chk=14j4gvfm

Downs Syndrome
www.dsa-uk.com
The Down's Syndrome Association exists to support people with Down's syndrome, their family and carers as well as providing information for those with a professional interest. They also aim to improve general understanding and awareness of the condition and to champion the rights of people with Down's syndrome.

Dyslexia
www.bda-dyslexia.org.uk/
The Brisith Dyslexia Association campaign to break down barriers and provide a dyslexia-friendly society that enables dyslexic people to reach their potential. They will, with others, provide comprehensive support for an all-age dyslexic population.

Dyspraxia
www.dyspraxiafoundation.org.uk
The Dyspraxia Foundation are a UK charity which exists to help people to understand and cope with dyspraxia. They are a resource for parents, for teenagers and adults who have the condition, and for professionals who help all of them

Early Support

www.earlysupport.org.uk/pilot2/index.html

This website provides information, news and up-dates on Early Support (previously known as the Early Support Pilot Programme), a UK government initiative to improve services for disabled children under three and their families. The website promotes multi-agency working and is for anyone who works regularly with very young children and their families.

Education Leeds

www.educationleeds.co.uk

Education Leeds is responsible for providing all education support services that relate to children and young people of statutory school age in Leeds.It is described as the first place for information about schools and education services in the Leeds Area.

Epilepsy
www.epilepsynse.org.uk [or for scotland http://www.epilepsyscotland.org.uk/
The National Society for Epilepsy is committed to providing information and support to people with epilepsy, their families, friends and professionals involved in their care, and to raising awareness of epilepsy among the general public. In addition, they provide care for people with epilepsy through medical, residential and rehabilitation services. They have a confidential UK epilepsy helpline, which offers information, support and a listening ear. If you would like to talk to someone about any aspect of epilepsy, you can phone on 01494 601400 between 10am and 4pm, Monday to Friday.

Great Ormond Street Hospital's Child health and development site

www.ich.ucl.ac.uk/gosh_families/child_health_dev/  

Scope

www.scope.org.uk/

A site with information regarding cerebral palsy.

Sight Difficulties
www.rnib.org.uk
RNIB offers practical support and advice to anyone with a sight problem

Speech Disorders
www.stammering.org
The British Stammering Association (BSA) Web site provides information appropriate for different age groups from pre-school to adult, and for partners, speech and language therapists and teachers. Also, guidelines on speaking with someone who stammers, what's happening in the UK and around the world and links to Internet sites with interesting information on stammering, and people who stammer.

Spina Bifida
www.asbah.org (Association for Spina Bifida and Hydrocephalus)
This website provides information on spina bifida and hydrocephalus. It explains ante-natal screening, dietary information, genetic counselling, third ventriculostomy, slit ventricle syndrome and research. There is a directory of local associations and links to related Internet resources.

The Enuresis Resource & Information Centre

www.eric.org.uk
Here you can find out all about wetting and soiling. Whether you are a child, a parent, or a professional, you'll feel right at home with ERIC Online. A helpline is available on Tel: 0117 960 3060 10.00am - 4.00pm Mon-Fri

Starlight Children's foundation

www.starlight.org.uk

 Tel : 0207 262 2881

Brightening the lives of seriously and terminally ill children by trying to grant their wishes.

To qualify for a wish, a few simple criteria have to be met. The child must:

• be suffering from a potentially life shortening or life threatening illness
• be aged between 4-18 inclusive
• be able to choose and articulate the wish for themselves
• not to have received a wish from another wish granting organisation